Started off at about 8:30 AM. We all got into the car and made our way to Meridian Mark Road. A few hours later we arrived in Atlanta.
Dr. Greenberg was very impressed with how well Lilah's eyes look. He just raved about how "straight" they look. He was so pleased with how she followed the sounds he was making and the toys he placed out. She followed the lights well and he said, "I would like to get her pressures, but since we just got them in October before the surgery, I don't want to make her mad because she is tolerating all of this so well." If you recall, Lilah's pressures were NORMAL during the EUA in October. Greenberg was happy that Lilah is doing better physically.
He said, "I think we will attempt to get her pressures and more readings at the next visit in June and then we can space the visits out more...closer to a year between visits." What a blessing THAT would be on us as a family!
With Lilah's two eye conditions, increased pressures and glaucoma are her biggest risks and we must be VERY cautious of that. Yes, I pray against glaucoma...DAILY!
All six of us made our way back to the car for the 4.5 hour drive home. It was a LONG day but we were SO glad to have the good news.
Today was Lilah's BIG therapy day. On Thursdays Lilah has OT, PT, and ST from 9-12 at Backus. Lilah did AWESOME for EACH therapist. I am just SO proud of her.
This is her today after therapy...she just HAD to stop at the purple flowers outside of the mall for a feel and a look.
And THIS is what she did this morning BEFORE therapy...
Isn't God incredible?!
So, I have put a few calls in and am waiting to hear back to see if I can get Lilah into a few days a week of a pre-k program. I am praying about it and am actually waiting to hear back from Growing in the Son at SCC for the remainder of this year. I am not sure if they will accept her, or if they can accommodate her, but I feel led to see if she could learn in a classroom setting....
She LOVES our church and is already comfortable there...this may be a great way to help her learn.
I pray that they call back and if it is God's will, that they will have a spot for her, be open to have her, will teach her, and that Lilah will blossom like crazy even from just a few short months in the remaining year.
There are NO handbooks for what to do with your child, let alone your special needs child. Trial and error, prayer and petition, love and acceptance....and I pray I am making the right choices...
Time will tell. Only God holds the blueprints...I am just his servant.
His grateful servant.
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