Thursday, July 30, 2009
Welles, Aaron, Lilah and I before take-off
The weather was great. The flight was so nice...and quick.
45 minutes airtime.
Welles note to us before we landed.
As we flew, I prayed and prayed. I asked God to give me wisdom to ask the right questions, tell Dr. Lee all that was happening with Lilah, and peace to know it would all be OK.
This is what I saw out of my window.
Daddy and Lilah
Mommy and Lilah
When we got to the airport Mandy was waiting with a big smile on her face. We got in her car and rode to Dr. Lee's office. When we got inside Susan, Dr. Lee's receptionist, asked me if we flew today. I said , "Yes." (Thanks Susan for rescheduling our appointment to make this work.)
Lilah and AMAZING Dr. Lee!
****We came home to a fully cooked meal from my friend, Laura. Thank you for the chicken, mashed potatoes, green beans, fun drink, and my FAVORITE... Tiramisu. AWESOME***
Enjoy a video of us on the plane!
Wednesday, July 29, 2009
- Both eyes are focusing on objects, lights, toys, and my face more
- Lilah is rolling over more
- Lilah is more comfortable in her surroundings
I PRAY, humbly pray, that Lilah will NOT need transplant surgery.EVER!! That there is some other method and her eyes will clear more and more without invasive means.That Lilah's eyes will remain straight.
*I needed to get this out of my head...as much as I can*
We thank you for Lilah and all you have done in her eyes. We thank you for clearing some of her corneas. We thank you for giving her the ability to see us with what vision she does have. We thank you for placing her in our family. We are so grateful for her. We thank you for Angel Flight. We thank you for the pilot, Wells Murphy. We thank you for his generosity and kind heart.
We come to you today asking for a safe flight to and from Atlanta. We ask that you give Mr. Murphy your strength and guide him as he flies us. We ask that you please bless him and his family for his generosity. We ask that you please be with us on our journey and keep us safe.
Lord, we are coming to you in continued prayer for Lilah. We ask that you please heal her fully. We ask that you please continue to clear both of her corneas. We ask that you keep glaucoma and blindness from her eyes. We ask that you please use the most non-invasive methods to heal her eyes. Please keep her eyes from wandering. Please help improve her sight daily. We ask that you please help Lilah to remain still during testing. Please allow Dr. Lee to get accurate readings of her pressures and her corneal thickness. Lord, we ask you to please help us trust in YOUR plan. We ask you to give us your peace, your strength, and your wisdom.
We thank you, oh merciful Father, for the people reading and praying this prayer. We thank you for our amazing family and group of friends you have placed in our life. We thank you for their help .We are so grateful for the meals, the babysitting, the funds, the support, the love, and above all the prayers. We are forever appreciative for their love and generosity.
Thank you Lord, in advance, for the miracle you will perform in Lilah. We thank you for trusting us with her precious life.
In YOUR name we humbly pray.
Tuesday, July 28, 2009
Round trip air time...2 hours MAX.
Appointment time...average 1 hour
Total time away from our children, including drop off, drive to airport,etc....4 hours.
Not having to drive to Atlanta, be away from our kids for 11 hours, and spend tons of money...
- THANK YOU NEENA!
- Thank you to the kind receptionist at Dr. Cossio's office...thanks for the "GIFT."
- Thank you to the nice lady at the Health Department
- Thank you to the FAST and efficient man at the SS office
- Thank you to Penny at Dr. Lee's office for staying late and faxing over important info
- Thank you to the VERY nice, VERY patient, VERY kind woman at the SS office who is trying to expedite Lilah's case. What a blessing!
- Thank you to the retired veteran who placed his hands on Lilah and prayed for her...truly a GOD thing!
Thank you, Lord, in advance for all that you have planned for Lilah.
I was warned that Lilah will probably get denied. Even with 6 of us on one income. If we don't get it, oh well, I tried. But, if we do...what a blessing it would be to have that extra help to cover Lilah's meds, trips to Atlanta, and more. So, I will leave it to the Lord.
Just had to share all the little gifts God gave me yesterday. They were little BUT to me they were HUGE!
Monday, July 27, 2009
Saturday, July 25, 2009
- What time to leave..the trip takes 4.5 hours one way, 9 hours round trip, 11 including the appointment
- Will Lilah be any better
- Who will watch Alex, Sammie, and Eli
- Will Lilah be able to see
- Who's vehicle can we borrow...our 97 Caravan won't make it(thank God Aaron and his Dad just fixed the A/C)...Aaron's 90 Bronco...gas prices...No way!
- Will Lilah be better
- Food to pack for Aaron, Lilah and myself
Like I said, I realize that things could be worse...BUT every four weeks this is another burden I must ask others to help me carry. I have to find someone to watch the older three. The pressure test, holding her down, the corneal thickness test...all of those are hard enough for me and Aaron to watch. I know it would scare the ...you know what...out of my older three to watch their baby sister go through that.
I have an amazing group of friends and family who have helped me take care of the kids on the appointments. BUT I am interrupting their lives by asking for their help for 11 hours. Most of them work, most of them do not have small children, and those that do...that is three more kids I am asking them to watch. I know that they love me and my kids and want to help. I just feel like a HUGE burden to them. I pray that we will not have to go to ATL as much. I pray for normalcy.
I pray for the mundane!
I pray that Lilah is doing SO much better. That Lilah's eyes are clearing so much more. That her pressures are amazing. That her corneas are SO much thinner. I pray for the miracle of sight! I pray that blindness NEVER touches Lilah's eyes!!!
I pray that Dr. Lee will tell us we do not need to come back for a long time. I pray that if he wants to do the exam where Lilah will be sedated that he will do it soon before Alex goes back to school..before Sammie starts school.
I pray that the Lord will continue to bless us. We have struggled, financially, so much. I don't want to be rich. I just want to be able to not worry about how we can do this each month with the added expense of going to ATL. I would like to have the resources to fly....to fly to go see my new nephew, Christian, in Rhode Island(born 7/23/09...6lbs 5 oz). Some of this probably sounds ridiculous. Some of this sounds...I don't know. I am human. I am worried. I am overwhelmed. I pray for peace, for strength, for continued miracles for Lilah.
So, I will continue to praise and give it all to the Lord.
Psalm 68:19Praise be to the Lord, to God our Savior, who daily bears our burdens
Friday, July 24, 2009
Tuesday, July 21, 2009
Monday, July 20, 2009
Friday, July 17, 2009
Thursday, July 16, 2009
James 1:17Every good and perfect gift is from above, coming down from the Father of the heavenly lights, who does not change like shifting shadows.