"May the God of HOPE fill you with all joy and peace as you trust him, so that you may overflow with hope by the power of the holy spirit."

~Romans 15:13

Friday, October 28, 2011

Almost time..

Quietly I rise each morning and lace my shoes and go outside and run. Before the sun, before my family wakes, I am running. Many mornings I have been running for hours while most of you sleep.
In 8 days, on November 5, 2011, I will be running my first full marathon. 26.2 miles. Yes, you read that number correctly.
18months ago I ran my very first 5K. I was a nervous wreck. I had never run a race before. But, my cousin's wife had just gone to heaven and I wanted to run for her and how hard she fought breast cancer. I was also running for Lilah. I wanted her to see that her Mommy tackled a big fear and tried something very new and scary. My friend, Melissa, ran it with me. She ran slightly in front of me. She turned around every few minutes and told me I was almost there. Then, right before the finish line, she slowed up and watched me cross the finish line. The race photos showed her cheering me on from behind. I will NEVER forget that moment!
That night at church, she asked me to run the Princess Half Marathon with her. I told her she had lost her mind because I had just completed 3 miles and thought I would die. She told me I had months to train.
I did. On February 27, 2010 we dressed in tutus and tiaras and ran 13.1 miles through Disney World with our black tank tops embroidered with HOPE. We were running for Lilah. At the finish line Aaron held Lilah up so I could find my family. I cried with Liz and Melissa as we crossed the line.
One more time I am lacing my shoes and running for my girl. And this time, even more than the last, I am more nervous. I sit here with ice packs on my knees resting my overworked body as I type this. I sit typing with hands trembling as I realize what I am about to do for my child. For my family.
I want my children to see that their Mama was dedicated. She didn't give up. She didn't give in to the pain and fear. She was determined to cross that line on her feet.
Melissa and I talked the other day and her words brought me to tears. She said, "Katie Sharp (she always calls me by my full name) , I don't run 26 miles for just anyone. I am running this race with you...for her." Tears streamed down my face as I listened to her.
One more time, team HOPE will be running together. We will be in those same black tank tops embroidered with HOPE.
God has given me this child for a reason and a purpose.

I just laid her down for her nap. As I lay in her bed next to her. Her sweet little voice asking me to "SSSSSSS" for sing, I see the mighty GIFT that God has given me. This sweet soul has taught me SO many important lessons. She has taught me to fight for her, to fight for myself, to never give up. She has taught me that I have a purpose, that I have a gift and that I am here to spread the good news.
I am not a "strong" person. I am not superwoman. I am not different than any of you. I draw my strength from Jesus. I credit HIM and HIM alone for all of this. For everything.
I know that those of you reading this are wondering how I am finding such joy in each moment when months ago, not too long ago, I was still stuck in SO much grief.
John 9:3 “Neither this man nor his parents sinned,” said Jesus, “but this happened so that the works of God might be displayed in him."

I didn't see then what I finally do today. Lilah has changed us all. She has made us closer to Jesus. She has made us realize that we CANNOT do this by ourselves. We cannot do this on our own power and strength. Lilah was sent to me to teach me that I can do ALL things through HIM...and you can too.

Did I ever think I would be running a full marathon? NO WAY!!! Did I ever think I would be running for hours? NOPE!
But, I also never saw myself as the mother to a child with needs. I never saw myself as the person who would put her foot down and say what she needed. I never saw myself as Jesus' child. I thought that HIS grace was for everyone BUT me. Boy was I wrong. HE came to save us ALL. HE is inviting us to a life of freedom and grace. All we have to do is reach our hand back out to HIS that has been there all along and accept HIS offer.

Do you remember me telling you earlier in this post how Melissa watched me cross that finish line and cheered me on? She did for me what I have been doing for Lilah. I have been cheering her on to walk, talk, grow and learn.
In 8 days I will be drawing strength from Jesus as I run 26.2 miles. When I cross that line, and YES I will, it will be one of the most emotional moments of my life.
I will have done something that I never thought I would EVER do.
May I ask you to pray for me, Melissa,the other runners, and the people that I am quietly praying for as I run 26.2 miles for HOPE.

Philippians 4:13 is what I repeat as I run my long runs in practice. And this will be what I recite as the miles increase and I want to quit:

"I can do ALL things through HIM who gives me strength!"

Wednesday, October 26, 2011

Lilah's Laugh

Her sweet laugh is so contagious. This is sure to brighten your day. I'm not sure why it uploaded this way, but at least you get to hear her giggles!

She is SUCH a blessing!

Friday, October 21, 2011


To me, this image speaks VOLUMES about her perseverance, strength, and progress.

The Lord has really blessed us!

Thursday, October 20, 2011

I am SO cute!

Don't you agree?!

Sunday, October 16, 2011


Slowly we have been trying to help Lilah gain confidence by walking with our hands. Then we have gotten her to walk with just one. Side by side we walk...and I LOVE these moments.

Tonight as we decided to take a family walk down the street. I asked Aaron is he would take a picture of her as we walked by one of her signs. Little did I know what God had waiting for me.

45 minutes after this picture was taken on my cell phone, we made our way back home and I slowly let go of her hand...

and ...

she did it!

Lilah Hope Sharp took 3 steps unassisted!!

Yes, you read correctly...my girl walked!

and yes, she was mad as all..you know what when she realized that she did it on her own...
But, that is JUST it...

She did it!!

And now that I know she can...Mama Bear will continue to push her so she CAN do more.

Nothing will hold her back!

Praise Jesus for THIS blessing!!

Friday, October 14, 2011

My special child from HIM


God gave me a special child--
Softly, gently, meek and mild,
I was chosen by His grace--
To be the mom of a special face.
Little one so tender and true--
How my heart beats with love for you!
I love you forever just as you are--
You are my little shining star.
Different you are, different you’ll stay--
God made you special,
He loves you that way.
When challenges come as you grow old--
May God give me strength to be so bold,
Fearless, not helpless, but in Him I trust--
I am your mother, care for you I must.
Gladly I will for the rest of my days--
The Lord knows his plans for all my ways.
I made a vow which I will fulfill--
To care for you always,
And always I will.

God really is working in her life

Yesterday while her older sisters were in dance class, we practiced some one-handed walking. What you are about to see was taken with the camera on my phone. Please watch. Not only did her big brother reach his hand out for her, help her, but Lilah walked holding one of my hands on many different textures. This video speaks volumes about God, HIS miracles, and his love.

Thank you for continuing to pray for our family. Our sweet Lilah is doing HIS work daily.

Monday, October 3, 2011

Many Thanks

In our home prayer is something that we do with our children frequently throughout the day. We believe that prayer changes things.

Sometimes the circumstances change for God is a great God and He listens and answers our prayers.

Sometimes our perspective changes and we see things MUCH more clearly than we did before.
Sometimes we get a YES and a miracle occurs. Sometimes we get a No and we must understand that the No comes not because we are being punished, have done something wrong, or haven't done all we could. Sometimes the NO comes because we cannot see the bigger picture that God has planned for us in this life and the next.

Prayer helps us focus on HIM and find joy in all situations.

I will be the first one to tell you that MANY of my prayers have been answered...many miracles have occurred. But, MANY of my prayers have not been answered.

What I do not know is that God has a plan greater than my eyes can see. Sometimes I tell people that Lilah can see more than me. For she is joyous in almost all circumstances.

The Lord sent her to me, and my family, and those of you reading this...to teach us. He sent her so we would realize how precious life is, how we should take nothing for granted, how no matter how much we "try" to control the situation...it is always out of our hands.

Lilah Sharp, I am grateful for you. I am grateful for each and every moment I get to spend with you. Even those that pain me. When I am stripped of all that I can control in your life, God teaches me to rest solely in HIS grip. When there are no answers and I want to scream and shout...I must turn my eyes on HIM and focus on what HE is doing with us. He is using us to help lead others to Him. I never asked to be a "witness." I never asked to bear the cross of such pain, and watch daily as my child struggles. But, neither did Jesus.
HE didn't ask to be born with the intention to die for you and me...for all of us. But, HE knew that HE had a purpose and that God had a plan. So, He prayed and asked God to take the cup from Him if it be thy will. Well, the cup wasn't removed. He took the punishment for all of us. He took it so we could find freedom in HIS name.
I may not always see that Jesus is using us. I may not always want to be used. But, I believe we are here, together, for a great purpose. Thank you for teaching me daily.
I love you more than you will ever know.

My sweet Lilah Bird!
Thank you for the constant prayers, love, and support.

We love you all!

Sunday, October 2, 2011

Lilah Talking and singing and signing

Please watch this and you will see how far she has really come. We thank you for all the love, support, and prayers. We cherish them more than you know!