Eyes open wide

(HUGE victory for Mama Bear and Lilah, 2 of these signs are on my road near my house)

Last night at church I was talking to Stephanie.( Remember, Stephanie is one of the volunteers that works in Lilah's room) We were talking about Lilah and she began asking me some questions about Lilah's condition. Then she spoke and it was as if God gave me the GREATEST peace.

Stephanie asked me : "Does Lilah not walk yet because of the fear or something else?"

I went on to tell her how 2 of Lilah's previous PTs (physical therapists) kept pushing me and telling me that there MUST be something more than just her visual impairment that makes Lilah like she is. So, we did ALL of these tests, doctors, specialists, and all have come up with NO conclusion and NO answers. Then I told her how Lilah's O&M specialist says Lilah is right on track for visually impaired children. I told Stephanie how there are SO many schools of thought.

And THIS is what she said....


She told me how she believes it is FEAR that prevents Lilah from walking.(EXACTLY what I have been saying ALL along, but no therapist wants to listen) Stephanie told me what she sees and cannot see with her Nystagmus and how she cannot even see the ground. She told me that she is fearful when she goes places because she cannot see what she is walking on...and that "this is the reason I always wear flip flops, even in the snow, so I can feel the ground." She went on to tell me how bright lights will make her almost blind...JUST like Lilah. So much of what she said was like getting the answers I have been seeking for SO long.

Here she is, this beautiful Mother of two, who is legally blind from congenital Nystagmus and she is LOVING on my child...and now me.

I spoke with Stephanie's husband for a few minutes last night. Her husband told me that most people don't take her serious because they know nothing of the condition and they think she is drunk(due to her eyes moving) so they ignore her and don't listen to her or look at her when she speaks. He went on to say how people will think she is lying because she can function so well, but when they look at her, they don't really listen.

I had such an eye opening experience last night.


My 5 minute conversation with Stephanie taught me more about my child than 2 years of therapists. Stephanie HAVING a visual impairment, explaining to me...lovingly how she sees, and listening to me was a BLESSING!

One of the ways I can help Lilah the most is to educate myself and fight and push for her. I have been begging God for someone to talk to...and after over two and a half years of begging, God has delivered a person to me.

God allowed me to be in the valley, alone, so I would look up to Him, ONLY, for my confidence, strength, and HOPE. Once I learned to lean on HIM first, then HE opened the door for me to hear lessons from others who have walked this path.

Again, I didn't get what I wanted, when I wanted, but I received what I needed when the Lord knew I would be open and ready to hear it.

The picture above is of one of the TWO signs that were JUST placed on my street. About 2 months ago, if that, I went to Public Works here locally and spoke with a VERY Godly man about Lilah. With her on my hip, we were told that they would place signs on my street. I didn't expect them SO soon...Two days ago,we got VICTORY!

THANK YOU JESUS!!