Many of the articles I have read, and/or linked on this blog have been from Texas School for the Blind and Visually Impaired. I have read article after article from what they have written or produced. What an amazing source of information and knowledge they provide!
Since Lilah was born I have learned that I must fight for her and what I know she needs. I learned along the way that if I don't say what I know she MUST have to improve, no one will. I am her BIGGEST and BEST advocate. Sometimes being her advocate means making people mad or frustrated. But see, my intentions are never to hurt. My intentions are for my girl. I have learned that as long as I am pleasing God, Lilah is improving, and my husband and children are happy, then I am doing my job. Many will judge, but that's okay...
I have fought HARD to get Lilah O&M. HARD! Savannah Association for the Blind told me that I wasn't allowed to get O&M until Lilah was mobile, walking and getting around better. Well....TSBVI says VERY different. Read THIS article!
TSBVI says that O&M should be present as soon as possible to help the infant learn cues through tactile, sound, etc.
Lilah has been receiving O&M for about 3 months. I am going to stop right here and say a big fat WOOOHOOO that my fighting has paid off!!!
Lilah's O&M specialist, Yinka, is amazing! She spends the first 5-10 minutes loving on Lilah, allowing Lilah to feel her hair, earrings, snuggle, etc. Yinka gets MORE from Lilah than ANY therapist. She spends SO much time loving and respecting Lilah that Lilah gives back to her ten fold. I have heard her babble more, seen her get more mobile, etc just from Yinka allowing Lilah to do it a little more on her own terms. Yinka said, "I have learned to give the child choices, and if they don't want to do it, they will go back to it eventually."
Guess where Yinka did her Internship? Yep...you got it...TSBVI!
How cool is God for orchestrating THAT?
So, I just finished Lilah's IFSP meeting(s). Yes, we chat a LOT so we extend it to 2. LOVE that!
Having to make changes that benefit Lilah, and my family, may not be the easiest thing, but I am here to serve God and be the best wife and Mother I can.
2 comments:
Yinka sounds wonderful! I think if all therapists adopted a bit of that attitude all children would be better off!
Praise the Lord!!!!!
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