"May the God of HOPE fill you with all joy and peace as you trust him, so that you may overflow with hope by the power of the holy spirit."

~Romans 15:13

Tuesday, January 19, 2010

No fun at all

Saturday Morning Lilah began having difficulty breathing. I got her nebulizer out and started treatments. She was running a 102.7 temp. I gave Tylenol and then three hours later...I gave her Motrin. The more I did the less worked. I did treatments all day and into the night. Every two hours I was filling the vile with Albuterol and giving her a treatment. Her fever wasn't breaking and she was still wheezing...and miserable.


Nothing worked!


Sunday Morning I took Lilah to the Urgent Care center. They listened to her, watched her o2 saturation, and said she needed to go to the hospital right away.


I immediately rushed Lilah to Memorial Hospital.

They took her quickly to triage and started treatments. Albuterol, then fifteen minutes later...Duoneb, then albuterol again. In the minutes between the treatments they ran tests. A chest X-ray, an IV started and blood work to see what her WBC was. The ER doctor, residents(MMC is a teaching hospital), and my pediatrician decided Lilah needed to be admitted.


The Respiratory Therapists did breathing treatments with chest compressions every two hours.

Sunday night was one of the longest nights. Lilah moaned, cried, screamed, and fought all night long. Her fever would not break. It was pure agony watching Lilah go through all of that pain and torture. I asked the PM Respiratory Therapist if they were going to do an RSV test on Lilah, and he was shocked that they hadn't done it sooner. So, at 4 am Monday morning the Respiratory Therapist put a long tube down Lilah's nose to her throat and suctioned all this junk out of her lungs. Lilah screamed and cried and tried so hard to fight them. But, we held her down and they took the junk from her lungs and tested it.

RSV negative.

So...

Chest x-ray was clear
RSV negative
Blood work normal
Stool normal

BUT...

Lilah still had a fever
Lilah was still wheezing
Lilah still had diahrrea

It was quite the conundrum.

After a VERY long night of no sleep...

The next morning, the nurse gave me all the fixings to give Lilah a bath...a sponge bath.

I don't know about you, but a shower/bath always makes me feel so great.

Lilah is like her Mama...

We were so tired, but really happy when Aaron came to the hospital with the kids.

Lilah LOVES her siblings. She smiled. Laughed. Watched and Listened.
Lilah was so glad to "feel at home."
But then..they had to go back home.

And it was just me and sweet Lilah again.
Lilah's pink eye really hurt her. She would rub and rub and RUB her eyes.

Lilah had such a hard time trying to rest.
My heart just ached for her. I hated watching her struggle so hard to breathe. Everything just took so much from her.
Thank God we are home.
Praying for REST.
Tomorrow...
We are going to Atlanta for her Ophthalmology appointment.
Praying that Lilah cooperates and feels better. She is so on edge right now that each movement makes her cry.





4 comments:

john walken said...

gosh...i have been reading your inspiring story! my son has autism and he cannot speak...and autistic children are generally so different from one another...so i think i know what you mean when you talk about how rare your daughter's case is. i think god leads parents like us to one another so that we have someone to lean on...a net of support...

Anonymous said...

Many blessings in that post! Prayers answered and continuing that she is completely well soon.

I mailed the book to you today, finally.

Barbara

Lisa Christine said...

Oh my! You have been through a lot this week! Hope things are going better...

Anonymous said...

How are things going? Prayers still going your way. Blessings]
QMM