We got so much information Thursday, 1/15/09. First, Lilah's pressures were great (15,18). Dr. Lee is having us stop the Trusopt (pressure/glaucoma) drops for 3 weeks. Answered Prayer!
The FML steroid drops are only effective for a short time so, Dr. Lee has changed the dosage to 1 drop in each eye once a day.
Dr. Lee said that Lilah's left eye looks like it has reached a plateau from the drops. Her right eye is very,very slowly clearing on one side.This means one of several things. First, if only one of Lilah's eyes clears,probably the left, Dr. Lee may not do surgery because the right eye may never respond to surgery and she has an increased risk for glaucoma, trauma to the transplant, Strabismus (from Greek: στραβισμός strabismos "to squint," from στραβός strabos "squinting"[1]) is a condition in which the eyes are not properly aligned with each other, and if she will never see from her right eye he would rather her look cosmetically like she has two working eyes. Secondly, if both of Lilah's eyes remain cloudy then he would begin transplant working on one eye at a time.In order to prevent surgery on the eyes the pupil must be completely clear with no obstruction.
At this time we have not had to do surgery:answered prayer. Dr. Lee said that when he first met us he was 90% certain Lilah would need surgery. Now, he said, he is 50/50. We go back to see Dr. Lee on 2/6/09 to check her eyes again. He will check her pressures, the cloudiness and the thickness of her corneas.(Her corneas measured 1000 on 12/23/08.That is double the normal level) If her eyes have continued to improve on the 6th then we would continue our regimen until the beginning of March. At that time we will know whether or not surgery will be needed. We have a time frame of 6 weeks.
I know....TONS of info.
So, here goes:
Please pray for the FML drops to continue to clear the cloudiness of both of her corneas. Please pray that the pupils of both eyes are completely clear within the next 6 weeks.Please pray that her pressures will remain within the normal range. Please pray that Glaucoma does not set in. Please pray that Lilah will be healed completely without surgery. Please pray for sight. Please pray that Lilah will get vision from both eyes. Please pray that Lilah will continue to be an inspiration. Please pray that Aaron and I are able to remain strong, hopeful, trusting and patient. Please pray for wisdom, guidance, strength, and peace.
Aaron and I are so grateful that God has given us so many miracles and HOPE with Lilah. We are so, very grateful for all of your prayers. Thank you for praying, forwarding the info, asking for prayers from others, the support, love, food, help, babysitting, and so much more.
We must be patient. Miracles happen on God's time, not ours.BUT they DO happen!!!
I trust Lilah will see. I know that the Lord has answered so many prayers and is listening to each and every one of you. THANK YOU!!!!!!!!!!
Much LOVE! GOD BLESS!
"I will put my trust in HIM."
Hebrews 2:13
The FML steroid drops are only effective for a short time so, Dr. Lee has changed the dosage to 1 drop in each eye once a day.
Dr. Lee said that Lilah's left eye looks like it has reached a plateau from the drops. Her right eye is very,very slowly clearing on one side.This means one of several things. First, if only one of Lilah's eyes clears,probably the left, Dr. Lee may not do surgery because the right eye may never respond to surgery and she has an increased risk for glaucoma, trauma to the transplant, Strabismus (from Greek: στραβισμός strabismos "to squint," from στραβός strabos "squinting"[1]) is a condition in which the eyes are not properly aligned with each other, and if she will never see from her right eye he would rather her look cosmetically like she has two working eyes. Secondly, if both of Lilah's eyes remain cloudy then he would begin transplant working on one eye at a time.In order to prevent surgery on the eyes the pupil must be completely clear with no obstruction.
At this time we have not had to do surgery:answered prayer. Dr. Lee said that when he first met us he was 90% certain Lilah would need surgery. Now, he said, he is 50/50. We go back to see Dr. Lee on 2/6/09 to check her eyes again. He will check her pressures, the cloudiness and the thickness of her corneas.(Her corneas measured 1000 on 12/23/08.That is double the normal level) If her eyes have continued to improve on the 6th then we would continue our regimen until the beginning of March. At that time we will know whether or not surgery will be needed. We have a time frame of 6 weeks.
I know....TONS of info.
So, here goes:
Please pray for the FML drops to continue to clear the cloudiness of both of her corneas. Please pray that the pupils of both eyes are completely clear within the next 6 weeks.Please pray that her pressures will remain within the normal range. Please pray that Glaucoma does not set in. Please pray that Lilah will be healed completely without surgery. Please pray for sight. Please pray that Lilah will get vision from both eyes. Please pray that Lilah will continue to be an inspiration. Please pray that Aaron and I are able to remain strong, hopeful, trusting and patient. Please pray for wisdom, guidance, strength, and peace.
Aaron and I are so grateful that God has given us so many miracles and HOPE with Lilah. We are so, very grateful for all of your prayers. Thank you for praying, forwarding the info, asking for prayers from others, the support, love, food, help, babysitting, and so much more.
We must be patient. Miracles happen on God's time, not ours.BUT they DO happen!!!
I trust Lilah will see. I know that the Lord has answered so many prayers and is listening to each and every one of you. THANK YOU!!!!!!!!!!
Much LOVE! GOD BLESS!
"I will put my trust in HIM."
Hebrews 2:13
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