AMAZING...

On Tuesday afternoon I received a call from Angel Flight that Welles had picked up our mission and would be flying us to Atlanta for Lilah's appointment.

I was thrilled because we hadn't seen him in months and this meant we would only be gone six hours verses eleven.

As I wrote in previous posts...I was at peace about this visit. I just knew Lilah's eyes were clearer...the big question was..."Did Greenberg think so, too?"

We arrived at the airport and I got a great big hug from Welles. (We also learned some sad news...keep reading)

Welles flying

Lilah asleep in my arms

Notice...she never lets go


My cousin, Mandy, picked us up at the airport and we got to meet our new cousin, Henry. We had about 40 minutes before the appointment, so we grabbed a quick lunch. Thanks Mandy ever so much for driving us to and from the appointment.

When we arrived at Greenberg's office...it was packed. Aaron and I gave our information to the receptionist and sat down. Lilah was in such a great mood. She crawled on the floor and laughed with other patients.

When we headed back to the room we told Greenberg's nurse about Lilah's improvements.
She told us that he would be right in...

When Dr.Greenberg walked in the first thing he noticed was her eyes. He said, "they look clearer from here." We said, "We think so!"
He said, "Well, let me take a look." Then he said he wanted Dr. Elliot to come in and have a look. He called Dr. Elliot in and began to tell him about Lilah's eyes and how cloudy they were before. (Dr. Elliot saw Lilah's eyes before we left the last time...I think he is a resident or new to the practice...obviously Peters Anomaly, Sclerocornea, and cloudiness of the eyes isn't common)

He asked if the nurse had put the numbing drops in, and we said, "no."

He said, "I doubt she's going to let me get her pressures, but we'll try."

He placed the drops in Lilah's eyes and reached for the tonometer. Lilah was actually giggling while he checked her pressures. He smiled and said, "18." Then he did the other eye and said, "9...let's try that again" and he did it again, "13!" Dr. Greenberg said, "wow." He smiled at us and gave us that look of, "see, she doesn't need the Trusopt." Lilah was phenomenal during the procedures!

He looked at her eyes to see if they were reflecting and sure enough, they both are. The left is most definitely, and the right has a small glimmer of red. Red is a GREAT sign! Again, Dr. Greenberg said, "wow."

He asked me if I was still patching her eye and I said yes. He asked me if we saw a difference and Aaron and I both said, "yes." He asked if she could see her food with the patch on and I said, "its better." Then he said something that gave me chills. He said, "keep patching three hours a day. I was certain we were going to lose it, but...its obvious she's seeing something out of it. The patching is saving her eye!"

He told us to stop the Trusopt(glaucoma prevention...pressure control drops) and he said, "Its time to stop the Lotemax(steroid drop to clear her eye). She can't be on it forever." Then he said that some patients see an increase in the cloudiness after stopping, so he wants me to watch her eyes closely and give a drop every few days, then once a week until we can wean her off of them.

I have never seen Dr. Greenberg this animated. This excited.

He said, "keep it up" and gave me a HIGH FIVE!

He walked out of the room and looked at his nurse, pointed back at Lilah, and said, "She is doing GREAT!"

We have NEVER given up HOPE! We pray, have faith, and hang on to HOPE each moment....
Lilah holding on to my necklace...and HOPE!


Thank you God for Lilah and her miracle!

* Aaron and I would like to thank Welles for flying us. He has become a part of our family. We learned at the beginning of our trip that his granddaughter, Stephanie, was killed in Haiti during the earthquakes. She was a missionary. She was there to help others. Aaron and I ask that you keep him and his entire family in your prayers. Welles is a very giving, compassionate man. I can only imagine how amazing Stephanie must have been. I dedicate this post, this HOPE, this encouragement to her. She gave so much to help others. She sacrificed for others. Welles told us that his family will be building a school in her name in Jamaica this summer. Stephanie, you are greatly missed*