The nurse who came to the house evaluated her health and development.
Lilah weighs 13lbs.13oz and is 23.5 inches long. (she gained 2 lbs in 22days) :)
Lilah has been referred to Babies Can't Wait. Because of her vision problems, Lilah is developmentally delayed. Those words "developmentally delayed" were VERY hard to hear. I knew this information. I am with her all the time. I see how different she is compared to other babies.Hearing those words and saying those words...WOW....so difficult. I know children develop at different levels,and she could jump back on track later on.
We go back to Atlanta to see Dr. Lee next Friday, 3/06/09. Originally Dr. Lee gave us until Lilah was 3 months old to make a decision about surgery,etc. Lilah turned 3 months yesterday. I am asking for some VERY specific, intercessory, constant prayers for Lilah.
Heavenly Father,
You know what lies in my heart. You have heard my many cries. I come, again, to ask for you to heal Lilah. I pray for Lilah to be completely healed. I ask for the miracle of sight. Please give Lilah vision in both eyes. Please Lord, please help Lilah to be able to use her eyes to work for you. I ask that you please help Lilah to develop normally. I ask that you please keep Lilah from pain.Lord, I ask you to please hear the prayers of all of the people praying to you right now. I am so humbled and grateful for the miracles you have created within my precious baby. I thank you for those rare moments when I sing to her and she smiles. I thank you for her. I love her with all of my heart and wouldn't change any moment I have had with her. I ask you to be with Dr. Lee. Please continue to guide him and give him the wisdom to heal our baby. Please Lord, please give us your peace. Please give us your strength, courage, wisdom, and guidance. Please Lord help calm my fears. Please Lord help me to feel your presence during this time of uncertainty. Please help me to trust fully in your plan for Lilah. Please keep Lilah still during testing. Please keep Lilah free from pain. I ask that the FML drops continue to clear and thin her corneas.I ask that her pressures are low. I ask that her pupils are more visible. I ask that her corneas have thinned even more. I ask that Lilah begins to see more each minute, each hour, each day.Please give us a miracle. You, oh mercifully Lord, are the ultimate healer. Through You the blind will see. Through you we are free. Please Lord, please place your hands all over us and give us your strength to endure. Thank you for the faithful people interceding right now. Thank you for giving me amazing friends and family who will not leave us during these times. Thank you for those people who have reached out, helped us, prayed for us, and followed the Holy Spirit. Thank you for those people who don't know what to say. Lord, give them courage to call and wisdom to know that we need them. We need to feel your presence through them. We need to know that you are there and will "never let go, through the calm and through the storm." Lord, I thank you for what you have done in Lilah and through her. Thank you for the miracles that we have yet to see. Thank you for knowing how scared I am , and for giving me peace and comfort to know that it is OK to be scared. Thank you for giving me peace to know you have this in your hands and Lilah will be just fine. Lord, thank you!
Amen
Thank you for praying, asking for prayers, interceding, remaining faithful and trusting. The power of prayer is really amazing. Please don't give up HOPE! Thanks so much!
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