quick update..

This will not be the prettiest looking post, nor will it be the most descriptive. But, here goes with as much as I can fill in, in the next few minutes.

Much has happened. Many things are taking place. My fighting for Lilah is paying off!!

This morning she will FINALLY be meeting an O&M specialist. wooohooo!!! Then this afternoon she will be getting a functional vision assessment with from a VT from a different county(politics of the counties makes me SO frustrated!) with my Ga PINES rep who has pushed and fought and helped me so much. I cannot wait to see what they say about Lilah!

Lilah is now getting PT(physical therapy) 1/wk, OT (occupational therapy) 1/wk with Backus and 2/month with BCW(babies can't wait), O&M 2/month and Ga PINES 2/month.

Here is an example of her Tuesday this week:

• Speech 9-9:30 here at the house
• 9:30-10 drive to Backus across town
• PT 10-11 Backus
• OT 11-12 Backus
• Grab a quick lunch and drive back home. Lilah passes out in the car.
• OT 1:30-2:30 here at the house BCW

(in about 2 weeks I will add school drop offs, pickups to this)

We just got back from ATL 2 nights ago at 12:45am. I will post the details of that visit after today.

oh, and my baby girl is sick...again...