After we went to the geneticist, my mind began to RACE with questions, thoughts, emotions, etc.
Aaron and I are just overwhelmed with "what if" right now.
IF she does, in fact, have Peters Plus Syndrome
IF she has a genetic problem
IF there is something else
IF I have missed something in all the BEGGING for tests
IF I have failed Lilah in some way
IF I can do MORE to help her
Will a "diagnosis" ever change our LOVE for Lilah? NO. NEVER.
I want to know what, if, how, when, how much, what to do, when to do, etc. so Lilah will get what she needs. I NEED to know how to help her.
After all the emotions I began to realize that I am NOT trusting with my whole heart.
I want and NEED to know "what and if" so I can steer Lilah on the right path...
But.. I also NEED to stay focused on what is REALLY important.
THAT...
is
continuing to LOVE Lilah for who she is...
and
Do the best I can.
I look at Lilah and see LOVE, peace, strength, beauty, and I see God.
Little glimpses of heaven rolled into my beautiful baby girl.
We went to the park the other day and I watched Lilah as she was swinging...
She is LOVED.
She is beautiful.
She is patient.
She is AMAZING.
Thank you God for Lilah!
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